A San Francisco boy with a rare bone marrow disease has been on the waitlist for more than a year. Gia Vang reports. A San ...

Once the disease has reached the bone the only option is amputation. "I was able to slightly walk, although the disease had ...

Fibrodysplasia ossificans progressiva (FOP) is a rare genetic disease that causes human connective tissue to turn into bone.

Alicia and Jon Langenhop's three children were each diagnosed with a rare disorder. A clinical trial was "a no-brainer." ...

Kolkata: The Centre of Excellence (CoE) for rare diseases in eastern India, situated at IPGMER, has begun the procedure to ...

Once the disease has reached the bone the only option is amputation. "I was able to slightly walk, although the disease had eaten all my toes," Lokonyi, 28, told AFP. She was shunned by the local ...

Joyce Lokonyi sits on an upturned bucket, fingers weaving palm fronds as the wind pulls her dress to expose the stump of her amputated foot, lost to a little-known disease ravaging Kenya's poorest ...